Health Library

Health Library Explorer
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z A-Z Listings
Click 'Back to Intro' to return to the beginning of this section.

Discharge Instructions for Hodgkin Lymphoma

You have been diagnosed with Hodgkin lymphoma. This disease is one of a group of cancers called lymphomas. Lymphoma is a general term for cancers that start in your body’s lymphatic system. The lymphatic system helps fight disease and infection. It goes to every part of your body.

Treatment for Hodgkin lymphoma may include chemotherapy (chemo), radiation therapy, immunotherapy, and, in some cases, stem cell transplant. Here’s what you need to know about caring for yourself during and after treatment.

General guidelines

Follow any instructions from your health care provider. Be sure you:

  • Take all medicines as directed.

  • Understand what you can and can’t do.

  • Balance rest with activity. Take short naps during the day if you're tired. But try to move around and walk as much as you can.

  • Keep your follow-up appointments.

  • Call your provider if you have any questions or are concerned about any symptoms.

Ask your provider what signs to watch for and when to call. Know how to get help after office hours and on weekends and holidays.

Preventing and treating mouth sores

Chemotherapy is used to treat almost everyone with Hodgkin lymphoma. And many people get mouth sores during treatment. Mouth sores also can happen if you get radiation therapy to your head and neck. Here are some things you can do to help prevent them:

  • See a dentist at least 2 weeks before starting treatment. Have a checkup and cleaning. Have any problems treated as soon as possible.

  • Brush your teeth, gums, and tongue with a soft-bristle toothbrush after every meal and at bedtime. Talk with your health care provider if your gums bleed while brushing. Sponge brushes, mild toothpastes, and mouth rinses might be needed.

  • Don't eat foods that are acidic, spicy, salty, coarse, sugary, or dry. Don't drink alcohol or soda. Don't use tobacco products.

  • Don’t use dental floss if you have a low blood platelet count. This puts you at higher risk of bleeding. Your treatment team can tell you about your blood counts and what they mean.

  • Use any mouthwashes or oral rinses as directed.

  • If you can’t brush your teeth or use mouthwash, talk with your provider about other ways to keep your mouth clean.

  • Check your mouth and tongue for sores, bleeding, and cracks. Also check for white patches. This can be a sign of fungal infection. This is a common side effect of chemo. Tell your provider about any changes you notice. You may need medicine that can help.

  • Try cool or room temperature soft foods that are easy to swallow. Using a straw may help.

Managing other side effects

  • Let your health care provider know if you get a sore throat. It may mean you have an infection and need antibiotics.

  • You may develop skin blisters and burns from radiation treatment. Let your provider know. There are creams to help improve healing, and protect your skin.

  • Bathe or shower regularly to keep clean. During treatment, your body can’t fight infections very well.

  • Use soap or shower gel with moisturizers. Use lotion or a moisturizer while your skin is damp after washing. Treatment can make your skin dry and itchy.

  • If you start having numbness, tingling, or "pins-and-needles" pain in your fingers or toes, tell your provider right away. These changes may be a sign of nerve damage called peripheral neuropathy.

  • Be prepared for hair loss. Know that you can lose hair all over your body, including your facial hair, pubic hair, and sometimes even your eyelashes and eyebrows. You may want to cut your hair short and have hats or wigs ready.

You may have an upset stomach or vomiting during treatment. You may lose your appetite. Let your provider know. There are medicines that can help. Try to:

  • Eat smaller amounts of food often during the day.

  • Prevent nausea with medicines your healthcare provider provides.

  • Try to stay away from drinks and foods with strong smells. Eat bland foods that are easy on your stomach.

  • Include some of your favorite foods in your diet.

  • Make sure you drink lots of water and other healthy drinks.

  • Try soft, plain foods. These include pudding, gelatin, ice cream, sherbet, yogurt, or milkshakes.

  • Make sure you cook all food well and store all food safely.

Follow-up care

  • Make follow-up appointments as directed by your health care team.

  • Tell you provider about any changes you notice in how you feel.

  • Stay up-to-date on flu shots and vaccines. Check with your provider before getting any vaccines. Some vaccines are not safe to get while in cancer treatment.

  • Keep all follow-up appointments. You'll need to be watched closely for the rest of your life.

When to contact your doctor

Talk to your health care provider about problems you should watch for. Be sure you know what number to call if you have questions or problems when your provider's office is closed. Contact your provider right away if you have:

  • Fever of 100.4°F (38°C) or higher, or as directed by your provider.

  • Signs of an infection, such as redness, pain, swelling, warmth, or drainage, or pain when you pass urine.

  • A cough, or coughing up yellow or green mucus.

  • Unusual bleeding or bleeding of any kind that does not stop.

  • New pain or pain that doesn't get better with treatment.

  • Headache, trouble focusing, or memory loss.

  • Feeling dizzy or lightheaded.

  • Fast or irregular heartbeat.

  • Rash or itchy, raised, red areas on your skin (hives).

  • Yellowish skin or whites of the eyes (jaundice).

  • New lumps under your arms, on or near your neck, or on or near your groin.

  • New pain, redness, warmth, or swelling in an arm or leg.

Call 911

Call 911 if you have:

  • Heavy bleeding.

  • Trouble breathing, wheezing, cough, or chest pain.

  • New, sudden confusion.

Online Medical Reviewer: Rita Sather RN
Online Medical Reviewer: Susan K. Dempsey-Walls RN
Online Medical Reviewer: Todd Gersten MD
Date Last Reviewed: 1/1/2025
© 2000-2025 The StayWell Company, LLC. All rights reserved. This information is not intended as a substitute for professional medical care. Always follow your healthcare professional's instructions.